Well my friends, it has been a very interesting three months so I thought I needed to bring you up to speed with my recovery! (Ooh, it sounds great to say that!)
Frustratingly after my last post I deteriorated again and had about a month or more of being very poorly indeed. Classic case of doing too much and a big bacterial die off reaction from my new medication is thought to have triggered it.
Despite taking all my pills and potions, green juicing, resting, meditating, praying and so on, it was day in/day out flu-like symptoms again. Desperate times called for desperate measures and I had heard from multiple sources that maybe I could help myself by changing my diet further. So I said goodbye to sugar, carbs in all their other forms and dairy - having already become gluten free and grain free earlier on in the summer.
Well. The improvement has been almost unbelievable. Within 10 days the horrific fatigue that left me laying down every day in August lifted by about 80% - it was honestly like a miracle. Since then my recovery has been steady and I continue to feel improvements daily. Prior to this I was having to measure slight improvements month by month otherwise it was all too disheartening.
By the end of October I was able to drive short distances most days, walk Matty three out of seven days (my friend walks him on the other days) and meet up with friends without having to plan days after to recover. Wonderful!
October was a busy month with hospital appointments that are dealing with the aftermath of having a persistent infection for so long. But I seemed to cope well with train journeys up to King's and many many tests.
It looks like the Lyme bacteria has damaged the way my heart conducts electricity, but the hope is that this will not cause me any major problems.
My kidneys are also struggling. Let's face it, they have coped so well for so long with many different drugs to treat the Lyme disease, it's understandable that they need a rest.
So I have to take a break from treatment....just as I was getting better...AAARRGH!
The USA doctor that is currently looking after me likes to treat you for several months after you experience no symptoms of infection. I still have pain, muscle twitches and moderate fatigue so not technically there yet, albeit improved. There is not much I can do about it however, I've only got two kidneys and there is no point beating Lyme to spend the rest of my life on dialysis.
More patience and faith is required.
I am still on the waiting list to see one of the top Lyme doctors in the USA. The waiting list has increased and while I was hoping to be out there at the end of the year, I have been told it'll be more like April. My hope is that this doctor will be able to iron out all the last bits of this disease so that it never comes back again!
Having this as an option, even though I will have waited a year for the appointment, is only possible due to all you wonderful people who contributed earlier in the year. Not only have you insured that there is enough money in the pot for that but also you have covered much of the treatment costs over the last three months. Everyday I am grateful and thankful. Where would I be without you all?!
So that's all for now folks, sending you all love and thanks xxx
