Happy New Year!
Our trip out to the States seems quite a long time ago now so thought I would touch base with how things are going.
The results from the many many lab tests came back about the middle of December and I had a 2 hour Skype call with my Doctor to discuss them. Although she had warned me about the multitude of problems we were dealing with, I had been a tad on the Pollyanna side - hoping that the situation was not as complicated as she suspected.
Her many years experience and thoroughness examining me meant in this case she was bang on and I needed a bit of British stiff upper lip after seeing the results in black and white (and some reassuring hugs from my lovely husband!).
In many ways it is reassuring to know that it was not just bad luck which resulted me being so seriously unwell. We now know that it is a combination of three tick borne diseases, a zoonotic disease, biotoxin illness, autoimmune disease and some pretty interesting genetics. Layers of an onion indeed!
Treatment can trigger worsening for a while so the usual rollercoaster of good days, bad days, good hours, bad hours looks set to continue for the time being. This can be very confusing to people "But you were ok half an hour ago?!" and the unpredictability of it is still right up there on my list of what frustrates me the most :-(
Still, it is best to know what you are dealing with, especially when you finally have someone experienced on board who can look at the whole picture and who has a plan. I do love a plan.
I have been forewarned that the road ahead is still long, I will need to continue to work as hard as I can to recover but continued improvement and ultimately a full recovery is expected - yippee!
So that's me for the time being, I'll touch base again in a month or two all being well.
In the mean time, as ever, thank you for your love and support. You are all awesome :-)
