The Master Plan May 2013

I am so overwhelmed with what has happened over the last two weeks, everyone has been AMAZING.

I never dreamed that we would be able to raise £7000 and I simply cannot believe that this has been achieved in two weeks!

Firstly I need to say how grateful and thankful I am.  You are all wonderful examples of human beings and I am so proud to have you as my friends.

The sum of £7000 was based on several UK people who had gone abroad for treatment.  It is so hard to estimate for medical problems (as I know all to well when doing estimates at work) but I calculated that this would cover an initial appointment, blood tests and maybe 6 months worth of medicine (although this is VERY difficult to guesstimate).  Of course I am ever optimistic that I'd get away with just one appointment and do the rest via Skype!  I will keep the fundrazr site open and use some of the extra funds to pay for the on going medications which Nick has been funding so far, so thank you once again - I never dreamed that this would be possible.

The doctor who is looking after me out there at the moment is a lovely, knowledgeable Lyme Literate MD.  We have Skype consultations but as he has never seen me in the flesh, I then have to take his recommendations to my GP and work with her.  She is as helpful as she can be, within NHS guidelines. 

Pretty much since my faculties came back to me I have been researching treatment, doctors and options.  I have been placed on a waiting list to see one of what I call the uber Doctors in the States.  That waiting list is 10 months long ie unless something amazing happens, it will be early next year before I get to see her.

My plan was to do all the ground work with my lovely LLMD and GP ie take the pills, go gluten/wheat free, physio, meditate, acupuncture and get back to work.  Then as soon as the appointment came around heading out to the States to ensure I have done everything in my power to get rid of the damn bug once and for all (my risk of relapse is high as I have been so ill for so long).

I also thought it would take many many months to raise the sort of money I needed.

Well, all of your generosity has opened up more options- there are other doctors I could consider, and I could go out and see my lovely LLMD in person.

I've been quite poorly this week - my medication changed last week so we don't know whether this is a die off of bacteria (yeay!) or me sliding back a bit.  Once I recover some energy beans I will suss out these new options and get back to you all.

Any money raised that is not used in my treatment will be redistrubted to other Lyme sufferers, so that they can benefit from your generosity too, if that's ok!

 

Thank you, thank you, thank you for your support xxx